Day 231 of 365

I got the word.

The results of the ultrasounds on my hands were not good. I had an ultrasound on the hands about a year ago and, in comparison, this one is worse. The swelling in the joints and tendons of my hands and wrists has increased. The joint destruction is continuing. With the aggressive treatments I'm on (injections of Methotrexate and injections of Enbrel) he should not be seeing ultrasound results like I had.

According to the doctor the hands are a good "dipstick" of the body. By doing a simple ultrasound of the hands and wrists you can determine the type of problems going on in the other joints. If it's happening in the hands, it's happening elsewhere. If the issues are getting worse in the hands, they're getting worse throughout the body. So it's not necessarily just about the wrists and hands, it's about what that information represents. 

When I started injecting Enbrel on Day 15, I couldn't believe I had gotten so desperate for relief. Then on  Day 92 when I had to start injecting Methotrexate I thought I had crossed my last line in the sand. Except now there is another line waiting for me. It's time for the last ditch effort, the thousands of dollars per session treatment.

The infusions. It's time for IVs.

Several in the first month, then one about every month afterward. Right now the doctor's office is working with my insurance company to decide coverage, but it appears it will only cover a portion of the exorbitant cost.

My daughter knows that with me only working part -time, finances aren't exactly strong right now. So she asked me what would happen if I refused the IVs. If I refused, things would continue to deteriorate and my body would never be able to recover. My joints would continue to fail and the pain would continue to get worse. Although, even with this new super-aggressive last treatment option, things could continue to get worse.

I feel kind of stuck right now. Do I put our family into financial stress to pursue treatment? Do I cut out one of the activities in my life - writing, working, or sewing - to try and keep me from using my hands too much? Do I do nothing and hope for the best?

Right now I'm in do nothing mode. I'll keep on the current treatments until I hear back from insurance. That will buy me some time before I have to make any decisions.

Time to sew, write, and harvest some of the last of the garden. Pumpkins, watermelon, kale, peppers, and some not-quite-red tomatoes.

Decorated Scarecrow Cupcakes - Day 230 of 365, Tutorial Tuesday

I couldn't be prouder of my daughter nowadays.

The teenage years weren't the best, though. Having both parents as school teachers didn't help things much, and having her dad as her teacher for a couple classes during high school didn't either. She was more interested in volleyball than studying. Yet we sent her off to college, paying her way - tuition, room and board, books and supplies, and some spending money. She rarely called home, and when she did the conversations were short. She was more interested in a social life than going to class.

Two years of college and she was back home. (Probably with the classes she did pass it only equaled one year.) She decided the working world was where she was headed. She moved in with my mom in the big city, hoping for better job opportunities. She couldn't find anything for the longest time, but finally as the Christmas holiday rolled around she got hired as temporary holiday help.

But bless her heart, the girl who was raised with a good work ethic but never put it into practice worked her tail off at that holiday help job. And when they let the holiday help go right after New Year's, they found a position for her. Then earlier this year when they did a round of layoffs store-wide, they moved someone into a different position so she could be kept on.

Now two years later that hardworking girl is still there. Loving her job and doing great at it. And little miss 23 year old calls home every day.

We are proud of her commitment to the working world. As a mom, I'm just as proud of the work she did for the tutorial this week. She bought the ingredients, prepared the workspace, and crafted what she wanted to say. Cool and confident on camera as she made Scarecrow Cupcakes.

Way to go, girl!

Click on the video for the directions:

Day 229 of 365

Guess I'm going to be sewing by myself forever.

I first thought I could get my daughter to help. While she doesn't mind helping me bake, she's made it clear that there will be no sewing for her.

Next I thought I could get my husband to help. He did some pressing for me on Day 144 and wound some bobbins for me last week when he was sick, but no sewing for him.

Then I thought I could get my mom to help. I even hinted back on Day 144  that I wanted to get her involved. And then last week on Day 225, I took over some stockings and felt I cut out for Stockings for Soldiers. I was able to get her through a couple stockings while I was there and she worked on some more after I left. But she wasn't exactly excited to be working on them. Guess no sewing partner there.

So back to myself. Me, myself and I, doing some type of sewing day after day. Sewing with a purpose. Sewing for others. I'm so excited about doing it, but I can't find anyone around me with the same excitement (or even a bit of interest).

No worries. A few hours solid hours of solo working time can equal a couple of quilt tops for Quilts for Kids.

Day 228 of 365

For some reason I'm not having much luck making zucchini bread.

I've been attempting to make more zucchini bread for a month now. I made a big bunch of loaves a while back and was planning on taking them to work to share. (I had promised a couple gals I'd bring them a loaf.) But those loaves never made it into the school building. For I had a meeting I had to attend before going to school that day. And that meeting wound up lasting all day long. Zucchini bread sitting in the very hot car all day wouldn't necessarily be a bad thing. But these loaves were piled together in a bag along with my lunch. The density of the bread along with the weight of the lunch I never got to eat created smashed loaves. The loaves got carted home with me (and were bad enough I threw them away), with a promise to the gals I'd bring fresh, non-smashed loaves soon.

So a few weeks back I went to make fresh loaves. Shredded the zucchini and got the ingredients out. My flour canister was empty and no flour bags could be found anywhere. I never run out of flour or sugar. But back on Day 71 when my husband and I were talking about an anti-inflammatory diet we decided to stop buying flour and sugar. And we had gone used up what we had. So no zucchini bread.

Last week we went to the grocery store and I picked up flour so I could finally make the ladies some zucchini bread. Then we picked several zucchini from our garden yesterday. We used one in our full-of-veggies stew last night and were going to use one on the grill today. That left us many more to shred for zucchini bread today. I got them shredded, got the ingredients out and... I only had a bit of sugar in the canister and none anywhere else in the house. Just barely enough sugar for one batch of zucchini bread. But I have plenty of shredded zucchini.

Tomorrow the ladies will get their freshly made zucchini bread.

If I had more sugar, I would have made a dozen or so loaves and probably would have eaten more than my fair share. Thanks to no extra sugar in the house I kept from eating too much. And thanks to no extra sugar in the house I was able to take the time I had planned on using for zucchini bread making and baking to do some sewing instead.

Nine patch quilt blocks for my next little girl's quilt for Operation Kid Comfort.