Tuesday, April 16, 2013

Day 776

The soap opera continues.

I got the latest test results from the rheumatologist's office today. My inflammation numbers are down, like to normal. As much pain as I'm in I'm not sure I believe it. Looks like the doctor doesn't believe it either because he wants me to retake them next week. No question about my liver function, though. It's not working right, with the bloodwork showing my liver function off significantly.

Thank goodness for my flowers. Only thing getting me through today.

Monday, April 15, 2013

Day 775

Getting closer to answers. I think.

I had another test over at the hospital today, a pulmonary function test. It's a test all about lung capacity and force and oxygen saturation and so forth. I failed. Big time. They ran several tests and every single one was abnormal.  Every single one. My lungs ranked from 40% to 71% of normal on the different tests. Not good. Even the one where they did a breathing treatment with medication, medication that opens up the airways of asthmatics? Yep, that didn't show the results it should have. (In my mind that test told me I don't have asthma - don't know if the doctor will see it that way or not.) It'll be a couple days before he gets results and then I guess we'll see where we go from here.

And if that wasn't enough fun for the day, the rheumatologist and cardiologist had a consultation about me. They both agreed I need to, despite all the terrible side effects, continue with the infusions. That means I'm up for one again this Friday. I don't know if I have the strength.

Despite all that, I did have something pleasant today. Just look at our gorgeous tree!

Sunday, April 14, 2013

Day 774

My daughter keeps telling me not to leave a bunch of stuff for her to get rid of. She's talking about when I'm no longer living and she has to clean out the house. We've been working hard at downsizing, but the sewing room? Yea, I'm afraid I haven't worked on downsizing it as much as I should.

I've always told kiddo that she wouldn't have to worry about my fabric stash because I'd use it up. But now with me being so sick I'm starting to wonder if I have too much. So today was spent getting ready to put some fabric on eBay soon. Might as well sell it there since that's where most of it came from anyway!

After spending the day working on what I can let go of, the boxes of colorful fabric fat quarters aren't even close to being full.

Saturday, April 13, 2013

Day 773

Medicine is amazing.

Imagine such a tiny little hole in the wrist could be used to access an artery which in turn holds a guidewire which is then replaced with a plastic tube which is then guided into the heart and moved in and out as dye is injected. All while the patient is awake.

Just amazing. (Not so amazing on the bruising.) Sorry for the icky picture.

Friday, April 12, 2013

Day 772

Finally home and finally into different clothes.

I had planned on being in Boise this past week for a conference so I had three sets of dress clothes. Unfortunately I wound up missing the conference and spent my days in the emergency room, the cardiologist's office, the rheumatologist's office, and then just yesterday the hospital. All situations not requiring dress clothes.

So I've been wearing the one set of comfy clothes I brought with me for several days in a row. But today I felt strong enough to head back home.

Ahh, clean clothes. And ooh, tulips in bloom.